من خیلی سرگرم کننده بودم که به بیماران سرپرست بیمارستان مراجعه کنم و به بیماران مربی مراجعه کنم ، با دکتر چشمم گپ بزنم ، و از او بخواهم او را برای شرکت در فضای مجازی آویزان کنم! Samsung Space at SickKids فعالیت ها و برنامه نویسی را برای بیماران و خانواده های آنها ، کودکان ، نوجوانان و خانواده ها فراهم می کند و می توانند با استفاده از فناوری تعاملی سامسونگ ، هنرها و صنایع دستی ، بازی ها و موارد دیگر از این طریق کاوش و توسعه یابند!

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48 پاسخ به “گفتگو با متخصص چشم در مورد از دست دادن بینایی و یادگیری اطلاعات جدید!”

  1. I've had the flashing lights for a few years and they're surrounded by purple with white lights, and I was diagnosed pretty much straight away as my dad, uncle, dad's mum all had it so we were all tested early on and diagnosed at the earliest possible time they could
    Love you girl, you're amazing speaking out about our condition like this x

  2. I really enjoy learning about your life and how you think about and go about your life. It's so amazing how you put your story out there to help and educate others.

  3. I was diagnosed with RP at 14 in a retinal Institute in alabama. I was considered legally blind at 15 then some Florida retinal specialist retracted legal blindness when i was 18. Im not 25 and still have decent vision in my left eye and only have light perception and the ability to see some shapes in certain areas in my right eye.
    My mom went completely blind by age 43 and my 19 year old sister has vision on 20/200 in her only working eye and is completely blind out of the other. So my sister has considerably fast progression.
    My progression has been fair, its not going so fast to where im consistantly changing eye glasses but i do have to go in again these next couple of months.
    Im glad i found your channel.

  4. I don't have RP, or any form of vision diseases and so on, but I get flashing colors at night. Usually not right away, but after a while, I get swirling patterns of red, green and purplish blue.

  5. I wonder what those "she's faking it" people think. Just looking at the rapid eye movement you got should show that your eyes are not same as ours. Just try to do that on command. Can't huh? Well no surprise

  6. I also had to visit the kids doctor as an adult because I have a genetic mutation that causes crap vision (not blindness but still not good) paired with progressive hearing loss… we didn’t know it was a genetic thing at the time, but we know now!

  7. aww your doctor reminded me so much of mine. i have had scoliosis which is a curvature of the spine since i was 4. i knew my doctor since i was 5 or 6 and went through a lot of tears but also happy moments with him. oh and i am kind of the worst case scenario too😅

  8. Very interested. I was diagnosed in my 30s with multiple genetic conditions as my health deteriorated. In hind sight, so many of my normal experiences weren’t normal at all. I had nothing else to compare them to though.

  9. I'm 23 years old and I'm certainly not blind, pretty sure I'm decently far from it. I remember I got glasses when I was around 8/9 years old and my vision deteriorated throughout my adolescence, I remember fearing one day I may go blind if it kept deteriorating at the rate it was going. By around 16 years old vision had deteriorated so much that I needed special glasses that condensed the glass so it wouldn't be crazy thick. Thankfully though, shortly after that my vision started to significantly slow down at the rate it was deteriorating. Now I only have the slightest change in vision every 2-3 years. Apparently for me my eye lens are deformed and when I grew, that's what was making it deteriorate so rapidly and then seem to stop all of a sudden. I still think going blind is something I'd find terrifying, but if I ever do in my later years, I hope to be able to have the same okness about it as you have learned to have.

  10. My mom and brother have RP, my mom decided to revoke her license around 30, however my brother has always been legally blind. My mom has less vision than my brother, but hers seemed to come on later in life.

  11. I identify with so much you said about meeting with your doctor. When I was 17 I met with my doctors physicians assistant. She was the first one to take my symptoms seriously. Since then we've been through so much trying to figure out what's wrong with my body and how it works. 31 now and we still don't have all the answers. Meeting with her now is always very emotional since she is the only other one who's been there every step of the way on my medical journey. Its also always validating since I'm always scared its all in my head for her to tell me its real and it is a difficult case.

  12. Can someone explain to me at 7:58 how she can see where to put her feet? I don't see if shes blind she can see and move to match the feet? I know when she films she looks straight into the camera because she can see light and they hold up anlight but the feet on the floor she follows perfect and moves to where they are and I'm wondering how?

  13. I didn't go through blindness but I am aware of what it is like to go through a worst case scenario. I dont know how to make a worse case scenario an experience that you can live with while feeling like it had purpose or that you can use this to prevent the pain for others. maybe striving for the answers is purpose in of itself. I still have a hard time leaving the house and seeing people who take for granted what I have never had and what I have lost. Or seeing things while I am out that remind me of the life I used to have. I have never had what people call normal, and even when I made what was normal for me happen that has been gone since 2012.

  14. It gives me hope as a partially blind women , that I am not alone in my struggles of talking about my stargardt eye disease. Your videos give me hope an and laughter. As I am not knowing long my remaining vision will stay.

  15. I don’t have vision loss but I do have a few chronic illnesses that mean I can’t work or really do much right now (and they also started with a decline in my health and ability) and I totally get being happy to get validation from a doctor that what you’ve gone through is real and it’s hard. Especially because personally I was hard to diagnose and people didn’t really believe me. Having your pain brushed off like it didn’t matter, and what you overcame didn’t matter, is never helpful or a good feeling. Especially slowly losing something is incredibly painful and not many people really understand what it’s like or can fathom how hard it is, or even want to fathom how hard it is because it’s easier to dismiss it.
    People need to have their struggles validated. It’s one of the most important parts of healing. Not feeling seen or heard, however you want to think of it, adds a whole other dimension to how disease and disability affects you emotionally. It makes you feel like you’re losing your mind when you are already losing so much. Just someone saying “I’m so sorry that’s happening to you” instead of “be more positive!” Or “have you tried this?” Is so much more helpful. But just sitting in that pain and discomfort is much harder for people than pretending that it’s not so bad or that they can fix it.

  16. Unpopular opinion you arent blind lol. You are clearly looking at specific things, you can read things as I’ve seen you do in videos, you look at peoples eyes, nose and mouth , theres nothing about anything you do or dont do that suggests you CANT see….. prove me wrong? I just dont see it.

  17. When I was 3 I had to have surgery on one of my eyes and I snuck out of the crib, hopped down the hall, (my IV was in the bottom of my foot), and scared my mom who'd been napping next to my crib, but she found me playing in the play room. Lol.

  18. Hi Molly! I'm a new subscriber, found you via the Inked video where you got your adorable elephant tattoo. Anyway, I'm working on writing a fantasy story and one of the main characters is blind. What tropes and misconceptions are you tired of seeing in media about blind people? What little detail or general scenario do you want to see in a story?

  19. I have bardet biedl syndrome I have rp kidney failure diabetic high blood pressure born with extra toe on both they were cut off when I was a few months old and I have about 5% vision I am 18 about to graduate high school may 31 I was diagnosed With my syndrome when I was 3 I have about 40% kidney function of what a normal person has and one day I will have to have a transplant the doctors can’t predict when it will happen I live in the US in Texas and I go to children’s medical center in Dallas Texas for my kidney dr and watchin ur vids help me see what the future might be like for me with out vision

  20. I mean…those kids in sickkids hospital are absolutely freaking adorable!!! That little boy is so incredibly articulate & intelligent! & soo cute! I'm shook!! Lol! So cute I swear! ❣️❣️🥰💓💓💗😂😚❤️

  21. Always love your videos!! Tbh I actually had stopped watching SOO much of YouTube for a while now. I just wasn't really feeling so many of the YouTubers I used to love watching regularly. So many of them unfortunately have changed for the worse. 🙁 👎🏻 But one of the classic YouTubers I love & who has consistently stayed her beautiful, authentic, & genuine, true self is Colleen Ballinger! Love her!! And I recently found you on her channel with your guy's collab together & have honestly been just NON-STOP addicted to binge watching all of your- & nothing BUT- your videos now! Lol! I just love your videos, personality, authenticity, sweet & hilarious personality, & everything you represent & are!! Keep it up Molly!! You are absolutely gorgeous! Muah!! 😚 ❣️💓💞💗🌟⭐️✨💫🌌🌠✴️👏🏻👌🏻😍😊💜💜💜

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